Gluten intolerance

    So, for about the last 2 years, we have been dealing with my DW’s gluten allergy which hit her out of the blue.  It went undiagnosed for several months, which was a very difficult season, as she felt terrible and was getting rashes that no regular doctor (even an allergist) could figure out.  Finally, a dermatologist correctly diagnosed it.

    If you have a gluten intolerance or celiac disease, you know how much of a lifestyle change this all entailed.  I’ve tried to be very supportive as we’ve gone through this together.  But I’m reaching a point as a caregiver where I’m realizing I need support as well and people to talk to who are spouses of gluten-intolerant people.

    I’ve been looking for a forum similar to TMB that is active where I can get some support and encouragement and get questions answered.  So far, all I’ve found is the National Celiac Foundation forum, and it’s not very active at all.   The last answers to questions were back in November.  Does anyone here have any ideas of places I could go?

    Thanks!

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    3 Answer(s)

      Sorry, have no idea.  You would think that as prolific as the conditions seems to be that there would be more on it.  I know a church that serves gluten free bread during their communion service.

      On the floor Answered on January 3, 2020.
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        I have celiac. It takes time to figure it out. The first year I made countless mistakes. The more I eliminated gluten, the worse I reacted to it during the first year of healing. It gets easier and it gets better. What a relief to finally get an answer. I went on for many years trying to figure out what was wrong. Be thankful that you now know. I don’t really have anywhere to point you, but you’re welcome to pm if you have any questions.

        California King Answered on January 3, 2020.

        The more I eliminated gluten, the worse I reacted to it during the first year of healing. 

        That’s what my DW has found out too.  Now that she’s eliminated it, when she does get “gluteined,” her reactions are worse than ever.  We’ve found cross-contamination is a very real thing too!!

        on January 3, 2020.

        Yes, and it doesn’t take much. I’m no expert but from observation I believe that once enough time has passed and the intestine has enough time to heal, it gets a lot better, even if you get contaminated. It’s also good to have a bit of a battle plan for when it does happen so that you can recover faster. It used to be a 4-6 week process to feel okay again after getting “glutenized”.

        on January 3, 2020.
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          I don’t have any specific ones, but you might try cruising the “mommy blogs”, particularly the ones that do a lot with meal planning and parenting snowflakes. There is no one more rabid about finding out–and sharing–everything there is to know about a problem than the mom of a kid who has that problem! One eating website that deals with clean eating in general, but does occasionally refer to gluten-free options is “100 Days of Real Food”. I think the blogger is Lisa Leake? If she doesn’t have a lot on her own site, she may have links or recommendations of somewhere else to try. And last I checked, she does have a method for direct contact and she or an assistant will answer e-mails.

          Years ago I saw a friend go through the process of discovering her celiac disease and learn how to manage it. She lost so much weight just by virtue of there being so little available (at that time) that didn’t have gluten “hiding” in it! I was concerned about her becoming so thin and weak. But eventually she found a rhythm that worked for her and is now quite healthy. Best wishes to you!!

          Under the stars Answered on January 15, 2020.
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